Thursday, May 14, 2009
Andrew's bloodwork
The tests came back negative for Celiac's Disease and we have been referred to a pediatric GI. He goes to see them on Wednesday next week. I'll keep you all posted and updated.
Tuesday, May 12, 2009
Playing the waiting game
All of our appointments are done.
Andrew had his bloodwork done, his stool samples (Daddy did them this time) have been sent to the lab and we are anxiously awaiting the results and the next step with his possible gluten allergy.
Lukas had his CT scan last week. Neil and he went to the sleep lab last night. Poor kid, we couldn't get all the goo out of his hair so tonight he got a buzz cut. Ive scrubbed him twice now and he still has lots of glue stuck all over him. He said he didn't get alot of sleep because the lady kept waking him up.
All of the results are being sent over the ENT and we have our follow up with the ENT and our usual nurse practioner on the 18th. We will get results and make a plan of action then. So now we wait...
We do have lots of cool stuff coming up as the school year ends. Andrew has his soccer closing ceremonies this weekend. Monday is the last pack meeting. Tuesday is Andrew's 9th birthday (where did my baby go???) We are going to do their birthday parties together again...it's easier on Mommy! Lukas turns 8 on the last day of school. It seems like yesterday I was waiting on him to get here. Where did the time go??
Andrew had his bloodwork done, his stool samples (Daddy did them this time) have been sent to the lab and we are anxiously awaiting the results and the next step with his possible gluten allergy.
Lukas had his CT scan last week. Neil and he went to the sleep lab last night. Poor kid, we couldn't get all the goo out of his hair so tonight he got a buzz cut. Ive scrubbed him twice now and he still has lots of glue stuck all over him. He said he didn't get alot of sleep because the lady kept waking him up.
All of the results are being sent over the ENT and we have our follow up with the ENT and our usual nurse practioner on the 18th. We will get results and make a plan of action then. So now we wait...
We do have lots of cool stuff coming up as the school year ends. Andrew has his soccer closing ceremonies this weekend. Monday is the last pack meeting. Tuesday is Andrew's 9th birthday (where did my baby go???) We are going to do their birthday parties together again...it's easier on Mommy! Lukas turns 8 on the last day of school. It seems like yesterday I was waiting on him to get here. Where did the time go??
Raingutter Regatta
Saturday was Pack 10's Raingutter Regatta. The boys built their boats from a kit but Neil and I had to use fruits and vegetables. We had a blast and Lukas even finished second!
Neil's boat
Rachel's boat
Tuesday, April 28, 2009
OK OK OK I am a bad blogger, I know
I realize that I haven't updated the blog in awhile...but we've been dealing with some insanity around these parts.
Let's start with the good. Easter was great, we spent a quiet day at home eating candy and ham. Andrew wasn't feeling well, so we had a quiet day of napping and just hanging out.
We are getting geared up for the end of the year and the boys birthdays. I can't believe they are going be so old!!! Where did my babies go?? And NO we aren't planning anymore. We got off that train a LONG LONG LONG time ago! LOL
They have been asking for bows since Family Camp in January. They got them! Thanks Grandma and Grandpa Keller. They are so very excited but bummed that Daddy wouldn't take them out in the dark to shoot them! They can't wait to get to the range.
Soccer is going well. Andrew is playing like a champ. He has scored three goals this year and for a kid who spends most of his game in the goal, that's pretty cool. He likes playing goalie but prefers playing forward. He just wants to play. PERIOD!! We did have our first soccer induced ER visit this weekend. Andrew has spent the last four days on crutches and in an immobilizer. I don't take knee injuries lightly and he took a hard hit and got a nasty bruise. The ortho wants him to stay off it most of the week but says he can play Saturday.
On the health front, We are busy with doctor appointments still. VERY VERY VERY busy.
Andrew is being tested for Celiac's disease. This is an allergy to gluten found mainly in wheat, barley and rye. We don't think he has an actual allergy to gluten just an intolerance. Basically we are becoming a gluten free family...no bread, pasta, cookies made from flour etc. Its really hard but the short time we have been doing it has made a HUGE difference in his stomach as well as mine. He is having a ton of bloodwork done and then we will move on to a GI doctor from there.
As if the gluten intolerance/knee injury wasn't enough, I've got a Lukas...
We went back to the ENT for our follow up visit last week. We saw the doctor that decided on doing his T&A-ectomies. We love Deb. She ROCKS!! She disagreed with the last chick in every way. His allergy tests came back...he has a VERY slight allergy to cat dander (meaning that he probably shouldn't live with a kitty but he can hang out with them) and he has a normal allergy to dust mites (most people do, thats why you sneeze when stuff is dusty) His flap thingy looks fine, so it was probably swollen due to his constant nasal congestion. So we are back to Square 1 for the 50th time. She is concerned about the size of his turbinates. Turbinates are small bones in your nose that the air flows over and becomes warmed and moisturized.
The doctor thinks that these bones are too large and that the air isn't flowing over them properly and that is causing the snoring and the apnea. We are working on the diagnosis of Obstructive Sleep Apnea, chronic nasal congestion and severe snoring. They are sending him in for a CT scan of his sinuses (May 7th) to check for the size of his turbinates and to see if his adenoids have grown back. Yes, they can grow back, it just doesn't happen often. They are also sending him for a sleep study on May 11th. This will tell us just how bad his sleep apnea is now. He hasnt had a sleep study since 2004 so we are excited to compare results. If all goes like they think it will, Lukas will be having a Turbinate Reduction surgery right after school gets out. I asked the doctors if we were just going to keep taking stuff out of his head until his brain quit rattling when he slept. He gave me the dirtiest look! LOL He goes back to the ENT May 18th for results.
I got to go see Jimmy Buffett in Tampa. It was an awesome show and I am so glad I got to go. I don't get to hang out much with mom these days so it was good to get to spend the day with her.
Our summer plans are up in the air big time. The possibility of Lukas' surgery obviously means that we won't be going to Day Camp in June. Not to mention that my lovely landlord has decided to just pocket all of the rent money that we have been paying him (along with our upstairs neighbor and all the tenants of a few of his other properties) instead of paying his mortage and our house is in foreclosure. The court was nice enough to name us as co-defendants in his foreclosure lawsuit so we get to go through the whole thing with him. Needless to say, we're moving!! We already had planned on moving back closer to scouts and soccer before the fall anyway after they closed our school, but we weren't planning on it being under these conditions. We have until May 31st but it's still frusterating. That's just what I wanna be doing in the middle of the kids birthdays!! Gotta love stupid people!
I know there are no pictures...but they still look the same. I'll post the pics of our pelican rescue adventures soon.
Hope all is well...gotta give a shout out to my family in Portland!! Thanks for helping with Flat Stanley!!
Let's start with the good. Easter was great, we spent a quiet day at home eating candy and ham. Andrew wasn't feeling well, so we had a quiet day of napping and just hanging out.
We are getting geared up for the end of the year and the boys birthdays. I can't believe they are going be so old!!! Where did my babies go?? And NO we aren't planning anymore. We got off that train a LONG LONG LONG time ago! LOL
They have been asking for bows since Family Camp in January. They got them! Thanks Grandma and Grandpa Keller. They are so very excited but bummed that Daddy wouldn't take them out in the dark to shoot them! They can't wait to get to the range.
Soccer is going well. Andrew is playing like a champ. He has scored three goals this year and for a kid who spends most of his game in the goal, that's pretty cool. He likes playing goalie but prefers playing forward. He just wants to play. PERIOD!! We did have our first soccer induced ER visit this weekend. Andrew has spent the last four days on crutches and in an immobilizer. I don't take knee injuries lightly and he took a hard hit and got a nasty bruise. The ortho wants him to stay off it most of the week but says he can play Saturday.
On the health front, We are busy with doctor appointments still. VERY VERY VERY busy.
Andrew is being tested for Celiac's disease. This is an allergy to gluten found mainly in wheat, barley and rye. We don't think he has an actual allergy to gluten just an intolerance. Basically we are becoming a gluten free family...no bread, pasta, cookies made from flour etc. Its really hard but the short time we have been doing it has made a HUGE difference in his stomach as well as mine. He is having a ton of bloodwork done and then we will move on to a GI doctor from there.
As if the gluten intolerance/knee injury wasn't enough, I've got a Lukas...
We went back to the ENT for our follow up visit last week. We saw the doctor that decided on doing his T&A-ectomies. We love Deb. She ROCKS!! She disagreed with the last chick in every way. His allergy tests came back...he has a VERY slight allergy to cat dander (meaning that he probably shouldn't live with a kitty but he can hang out with them) and he has a normal allergy to dust mites (most people do, thats why you sneeze when stuff is dusty) His flap thingy looks fine, so it was probably swollen due to his constant nasal congestion. So we are back to Square 1 for the 50th time. She is concerned about the size of his turbinates. Turbinates are small bones in your nose that the air flows over and becomes warmed and moisturized.
The doctor thinks that these bones are too large and that the air isn't flowing over them properly and that is causing the snoring and the apnea. We are working on the diagnosis of Obstructive Sleep Apnea, chronic nasal congestion and severe snoring. They are sending him in for a CT scan of his sinuses (May 7th) to check for the size of his turbinates and to see if his adenoids have grown back. Yes, they can grow back, it just doesn't happen often. They are also sending him for a sleep study on May 11th. This will tell us just how bad his sleep apnea is now. He hasnt had a sleep study since 2004 so we are excited to compare results. If all goes like they think it will, Lukas will be having a Turbinate Reduction surgery right after school gets out. I asked the doctors if we were just going to keep taking stuff out of his head until his brain quit rattling when he slept. He gave me the dirtiest look! LOL He goes back to the ENT May 18th for results.
I got to go see Jimmy Buffett in Tampa. It was an awesome show and I am so glad I got to go. I don't get to hang out much with mom these days so it was good to get to spend the day with her.
Our summer plans are up in the air big time. The possibility of Lukas' surgery obviously means that we won't be going to Day Camp in June. Not to mention that my lovely landlord has decided to just pocket all of the rent money that we have been paying him (along with our upstairs neighbor and all the tenants of a few of his other properties) instead of paying his mortage and our house is in foreclosure. The court was nice enough to name us as co-defendants in his foreclosure lawsuit so we get to go through the whole thing with him. Needless to say, we're moving!! We already had planned on moving back closer to scouts and soccer before the fall anyway after they closed our school, but we weren't planning on it being under these conditions. We have until May 31st but it's still frusterating. That's just what I wanna be doing in the middle of the kids birthdays!! Gotta love stupid people!
I know there are no pictures...but they still look the same. I'll post the pics of our pelican rescue adventures soon.
Hope all is well...gotta give a shout out to my family in Portland!! Thanks for helping with Flat Stanley!!
Thursday, March 12, 2009
I know, I know, I know...
I haven't posted an update and last week was a pretty big week, but I have a valid excuse or 12. Things have been insane....coming off a week filled with doctor appointments and camping then sliding into a new week of meetings and practice and FCAT for Andrew has been a little insane. The new schedule is going to take some getting used to, that's for sure.
Lukas did make it to the ENT last week. The PA noticed that the flap that covers his esophagus doesn't close properly (not to mention the huge glob of goo in the back of his throat). She wants to believe that this is all related and that his breathing problems and snoring at night are directly related to his allergies. She sent us out for bloodwork to test for every allergon known to man. In the mean time, we are trying a course of allergy medications (Claritin and Nasonex) and hoping that at least he will get some relief. It seems to be working. He is still snoring and waking up but he is so doped up from the "non-drowsy" Claritin that he is able to go back to sleep. We are a week into the new meds. He is almost through his first bottle of Claritin! He goes back to see the ENT on April 20.
Elton John and Billy Joel ROCKED!!!! I could sit here and type for hours and hours about the show. The set was amazing but it had nothing on the music....but geez both of those guys look OLD!!!
Friday was the first day of the pack campout. Neil and I and his co-leader Darryl went in early to make sure that we had everything taken care of and were able to get the grill in place before we filled the camp up with people. We had a great and relaxed time just hanging out.
Saturday was absolutely INSANE. We were up at 5:30am. We worked on getting things set up and then we had to take off for Neil and Andrew's first soccer game. Andrew did really really well. He played forward and defense for the first half. He played the entire second half in the goal because none of the other kids wanted to play back there. He did get scored on twice but he stopped several balls. He really liked playing goalie but he needs more practice in the goal. They lost 0-4. I think one of the kids on the other team was David Beckham...the kid was HUGE and he had a 5 o'clock shadow!! This week they got two new kids that are bigger so hopefully we'll play better this week.
We left soccer and went back to camp. We had a good time, lots of stress and pointless insanity but we pulled it off. Exhausted doesn't begin to describe it. Neil cooked for 100 people almost single handedly. He rocked!!! Andrew and Lukas both recieved their rank badges, along with a laundry list of belt loops and pins, along with other patches for family camp and parades. We were so proud of the way that they handled themselves not only at the pack meeting but at the campout. They set a goal at the beginning of the year to get their rank at Blue and Gold and they did it. Proud doesn't begin to describe it.
We got home Sunday afternoon, showered and put our PJs on at 3 in the afternoon. We all slept most of the day. I woke up Sunday morning extremely sick. I thought it was my allergies but I think now it was a spring cold. It has settled in my head and nose. YUCK!!!!
I cancelled Andrew's eye appointment that was scheduled for Monday. He is taking FCAT tests this week and he couldn't miss any school. (not to mention that all the Monday den meetings were cancelled so we didn't have to go up to Dunedin) He goes next Monday.
Tuesday was a committee meeting. Ummm yeah is all that I am going to say on THAT one.
We have another busy weekend. Plans with friends on Friday, soccer on Saturday, and something that I can't remember on Sunday.
Lukas is home sick today. His tummy isn't very happy. EWWWWWW
Hope all is well with y'all!! Remind me to post about Andrew and his chicken McNugget trauma (and no that wasn't me that called 911 about the nuggets)
Lukas did make it to the ENT last week. The PA noticed that the flap that covers his esophagus doesn't close properly (not to mention the huge glob of goo in the back of his throat). She wants to believe that this is all related and that his breathing problems and snoring at night are directly related to his allergies. She sent us out for bloodwork to test for every allergon known to man. In the mean time, we are trying a course of allergy medications (Claritin and Nasonex) and hoping that at least he will get some relief. It seems to be working. He is still snoring and waking up but he is so doped up from the "non-drowsy" Claritin that he is able to go back to sleep. We are a week into the new meds. He is almost through his first bottle of Claritin! He goes back to see the ENT on April 20.
Elton John and Billy Joel ROCKED!!!! I could sit here and type for hours and hours about the show. The set was amazing but it had nothing on the music....but geez both of those guys look OLD!!!
Friday was the first day of the pack campout. Neil and I and his co-leader Darryl went in early to make sure that we had everything taken care of and were able to get the grill in place before we filled the camp up with people. We had a great and relaxed time just hanging out.
Saturday was absolutely INSANE. We were up at 5:30am. We worked on getting things set up and then we had to take off for Neil and Andrew's first soccer game. Andrew did really really well. He played forward and defense for the first half. He played the entire second half in the goal because none of the other kids wanted to play back there. He did get scored on twice but he stopped several balls. He really liked playing goalie but he needs more practice in the goal. They lost 0-4. I think one of the kids on the other team was David Beckham...the kid was HUGE and he had a 5 o'clock shadow!! This week they got two new kids that are bigger so hopefully we'll play better this week.
We left soccer and went back to camp. We had a good time, lots of stress and pointless insanity but we pulled it off. Exhausted doesn't begin to describe it. Neil cooked for 100 people almost single handedly. He rocked!!! Andrew and Lukas both recieved their rank badges, along with a laundry list of belt loops and pins, along with other patches for family camp and parades. We were so proud of the way that they handled themselves not only at the pack meeting but at the campout. They set a goal at the beginning of the year to get their rank at Blue and Gold and they did it. Proud doesn't begin to describe it.
We got home Sunday afternoon, showered and put our PJs on at 3 in the afternoon. We all slept most of the day. I woke up Sunday morning extremely sick. I thought it was my allergies but I think now it was a spring cold. It has settled in my head and nose. YUCK!!!!
I cancelled Andrew's eye appointment that was scheduled for Monday. He is taking FCAT tests this week and he couldn't miss any school. (not to mention that all the Monday den meetings were cancelled so we didn't have to go up to Dunedin) He goes next Monday.
Tuesday was a committee meeting. Ummm yeah is all that I am going to say on THAT one.
We have another busy weekend. Plans with friends on Friday, soccer on Saturday, and something that I can't remember on Sunday.
Lukas is home sick today. His tummy isn't very happy. EWWWWWW
Hope all is well with y'all!! Remind me to post about Andrew and his chicken McNugget trauma (and no that wasn't me that called 911 about the nuggets)
Tuesday, March 3, 2009
An oopsie and an update
Neil had his "Intro to Coaching" event Saturday, that we were following up with a scout visit to Miltary and Police Museum in Dunedin and a poker night with a bunch of the other scout/soccer parents. Coaching was first though. He was so excited. He's already bought his cleats, but he needed soccer shorts and a few new Tshirts to match them. We stopped at Wal-mart and then headed to Dunedin. (Even though we live on the beach, Dunedin is our homebase. It's about 35 minutes away. Soccer, scouts, all the kids friends, my mom, and even most of the boys doctors are there. All we do anywhere near home is school and the beach.)
Neil dropped us off at his co-den leaders house while he went to his coaching thing. He was demonstrating one of the drills and somehow twisted his knee. It swelled up and was finally hurting enough that he wanted to go to the ER! It was Saturday and there was no Ortho on call at the little rinkydink hospital we went to. We sat for 4 hours. The PA that we saw, who is also a soccer player, thinks he has torn some ligaments in his knee. He is on crutches and in a brace (and somehow planning on coaching tonight and going camping this weekend) while we wait on an appointment with an Ortho.
In other news, Andrew went to the doc yesterday about his stomach. We didn't see our regular doc and I am kind of upset by it. She seems to think that he is just a picky eater while I think he has some food sensitivities. We butted heads but she did finally decide to do some tests to see if there is blood in his poop. Taking a stool sample is GROSS and that's all I'm saying.
Andrew and Neil have their first soccer practice tonight. Lukas and I are going to stay home and watch American Idol. LOL
Tommorrow Lukas goes to see his ENT about his constant snoring and apnea. He was in bed with us this morning (I am soooo ready for THAT to be over) and he did the whole gasp for air thing 5 times in 45 minutes.
Thursday is Elton John and Billy Joel!!!
Friday we leave for camp AGAIN....we'll be gone until Sunday afternoon. The guys have their first game Saturday morning at 10:30. =)
My babies are all grown up!
Neil dropped us off at his co-den leaders house while he went to his coaching thing. He was demonstrating one of the drills and somehow twisted his knee. It swelled up and was finally hurting enough that he wanted to go to the ER! It was Saturday and there was no Ortho on call at the little rinkydink hospital we went to. We sat for 4 hours. The PA that we saw, who is also a soccer player, thinks he has torn some ligaments in his knee. He is on crutches and in a brace (and somehow planning on coaching tonight and going camping this weekend) while we wait on an appointment with an Ortho.
In other news, Andrew went to the doc yesterday about his stomach. We didn't see our regular doc and I am kind of upset by it. She seems to think that he is just a picky eater while I think he has some food sensitivities. We butted heads but she did finally decide to do some tests to see if there is blood in his poop. Taking a stool sample is GROSS and that's all I'm saying.
Andrew and Neil have their first soccer practice tonight. Lukas and I are going to stay home and watch American Idol. LOL
Tommorrow Lukas goes to see his ENT about his constant snoring and apnea. He was in bed with us this morning (I am soooo ready for THAT to be over) and he did the whole gasp for air thing 5 times in 45 minutes.
Thursday is Elton John and Billy Joel!!!
Friday we leave for camp AGAIN....we'll be gone until Sunday afternoon. The guys have their first game Saturday morning at 10:30. =)
My babies are all grown up!
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